My Speech at the Leukemia and Lymphoma Society’s Annual Meeting

It is an honor and privilege to be here tonight- to share my story with you- and to convey to you the overwhelming gratitude I have for your tireless efforts.

On December 20, 2010, at the age of 29, I was diagnosed with a rare blood disorder called Grey Zone Lymphoma that affects less than 300 people in the United States.  Because this disease is a relatively new diagnosis characterized by features of both Hodgkin’s and Non-Hodgkin’s Lymphoma, I had virtually no statistics and little research about my disease. I decided that instead of being crippled by the lack of information- it was time to write my own story.

The news of my cancer diagnosis was both jarring and devastating. While it explained the months of flu like symptoms, night sweats and weight loss, I was an otherwise healthy young adult -who had always been proactive about my health.  It took a while for me to fully process the severity of my situation.

The night that I was diagnosed, I made a pat with myself that I was going to fight this disease with the same tenacity with which I wanted to live.

With the help of Northwestern’s Oncofertility Consortium, I took steps to help preserve my chances of having biological children before I started treatment and started to believe that there could be life after cancer, and that there was tremendous hope amidst the trauma.

I started an intensive chemotherapy regimen called R-Epoch on January 22nd which included a 5-6 day in-patient hospitalization where I would receive 120 hours of continuous chemotherapy every 21 days.

On May 10th, 2011-after multiple surgeries, scans,bood transfusions, and over 720 hours of intensive chemotherapy, I completed my 6th and final round of treatment.

As I headed toward the finish line- I was tested for one last time. I had contracted what could have been a fatal infection called gram negative rods that entered into my urine and my blood stream compromising my health to the extent where I was told minutes mattered. Fighting against the clock, and fighting for my life, the months of mental and physical training were drawn upon and leveraged. After spending another 4 days in the hospital, and two weeks in recovery, I started to write a new chapter.

When I finished treatment, and ended the routine of intensive checkups and surveillance-I found myself disoriented and confused about how to re-enter the world. Desperate to connect with the body that I felt increasingly disconnected from- I was determined to find an outlet that could help me strengthen and heal in the days to come.  Running became my refuge- it was my new drug. Running not only allowed me to escape from my overwhelming fears- but it allowed me to push myself in a way that reminded me that I was alive.

Overwhelmed with gratitude, and determined to pay it forward, I decided to sign up for the ½ marathon through the Leukemia and Lymphoma Society’s Team in Training. I felt a particular affinity and attachment to you because you were responsible for discovering the drug Rituxan which was a key component to the chemotherapy regimen- that saved my life.

Team in training became my second family. My coaches and teammates quickly replaced my beloved medical team.  You were my team of cheerleaders- working on overdrive to bring me to yet another finish line- a finish line that would eventually lead me to my next chapter.

In less than 3 months I ran hundreds of miles, and raised over $19.000 for LLS. Since then- I have joined your advocacy committee, served as your honored hero, and premiered on our city’s buses and trains- to help spread the important work that you do.

I stand here tonight- overwhelmed with gratitude. I am grateful for your fever pitch screams and motivational speeches on Saturday mornings. I am grateful that you believed that my body and mind could handle the journey to the next finish line. And I am grateful for your commitment, research, and advocacy to rid the world of blood cancer.

I am not the hero- I am merely the fortunate recipient of your hard work.

And so tonight- I honor you. I am surrounded by a room full of heroes. And without you- I would not be here.

Thank you.

Thank you.

Thank you.

 

The Leukemia and Lymphoma Society Ad Campaign

During the months that I was tied up, strapped down, locked in- I decided to train for a 1/2 marathon in spite of having cancer.  As my life was twisting out of control- running became my refuge. 

 Running allowed me to connect with a body that I no longer understood and felt betrayed by.

Running provided me with the clarity and focus I needed to navigate my fears.

Running connected me with the Leukemia and Lymphoma Society’s Team in Training- a dynamic and vivacious group of cheerleaders and supporters who are determined to raise money and awareness about blood cancer. 

It is an honor and privilege to be apart of the Leukemia and Lymphoma Society’s most recent ad campaign.

Check out tomorrow’s red eye and the CTA buses and trains this March for the latest ad.

Thank you LLS and TNT for the opportunity.

Your love and support throughout this journey has profoundly affected my fight and my ability to heal.  

Bending, Twisting, Moving.

This past saturday, nearly 50 women attended a 90-minute Zumba-thon to raise money and awareness for the Leukemia and Lymphoma Society (LLS).  As LLS’s honored winter hero I have had the privilege of meeting remarkable individuals who are deeply invested in finding a cure for Blood Cancer. Thank you to all the women that woke up early, checked their shame at the door, and let it all hang out!  This group raised $880 and had a great time doing it.

Because of you, because of your commitment, because of your dedication, one day we will find a cure.

But until then, we will bend, move, and twist

because we can

because we should

because we must.

Thank you for moving with me- I was in turn- deeply moved.

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