2026 Colors of SM: Expressions of Life with Systemic Mastocystosis

Welcome to the Twist Out Cancer Family!

On behalf of the Twist Out Cancer Staff, Board, and Brushes with Cancer Host Committee it is my pleasure to welcome you to the Twist Out Cancer family! We are so grateful that you have taken this step toward sharing, connecting and healing. Over the next few months you will be digging deep into your systemic mastocytosis journey and connecting with your esteemed artist. We recognize that opening up and creating artwork inspired by someone else’s story is no easy task! Your mentors are here to support you throughout this program. We hope you will take advantage of the peer to peer support programming and additional in person and virtual opportunities Twist has to offer. Below you will find updated information about the program, deadlines and upcoming events. If you have any questions about the process please do not hesitate to be in touch.

With love and gratitude,

Jenna Benn Shersher, MSW

Founder and CEO of Twist Out Cancer

The Program

Colors of SM: Expressions of Life with Systemic Mastocytosis is a systemic mastocytosis-specific art program developed in partnership between Blueprint Medicines Corporation and Twist Out Cancer. The Program is aimed at raising awareness of the experiences of those who are living with systemic mastocytosis.

This program strategically matches artists (the “Artist”) with those affected by this diagnosis (the “Inspiration”) to create unique pieces of artwork reflective of their journey. Their relationships are guided and supported by Twist Out Cancer Staff.

*Blueprint Medicines is a pharmaceutical company studying oncology, hematology, and rare diseases. Twist Out Cancer is proud to partner with Blueprint to bring this program to their community.

Important Dates and Deadlines

  • Orientation Call: May 4th, 2026
  • Peer to Peer Session 1: June 3, 2026 at 5:30pmCST/6:30pmEST
    • Registration links to come!
  • Peer to Peer Session 2: August 6, 2026 at 12:00pm (noon) CST/1:00pm EST
    • Registration links to come!
  • Digital Assets Due: September 18th, 2026
    • Links to come!
  • FAQ Call: September 9th, 2026
    • Registration link to come!
  • Artwork Due: October 2, 2026
    • Artists, please take note of 
  • Exhibition and Participant Reception: Sunday, November 15th, 2026 at Lilah Fishtown in Philadelphia, PA
    •  

Program Expectations and Agreement

The Colors of Systemic Mastocytosis: Expressions of Life with SM program is designed to cultivate a connection between the artist and inspiration (with support from the mentor, and the TOC community as a whole). The art is a tangible product of that connection and intended to illustrate a part of their specific experience – either a moment or as a whole. Willingness to share is required of both the artist and the inspiration. The artist is charged with listening and extracting elements from the inspiration’s experience to integrate into the art. The inspiration is not encouraged to direct or dictate the composition of the art work. It is an exchange of trust that can generate unexpected interactions and meaningful connections.

In order to participate, we require that all participants complete the program agreement.

Brushes with Cancer Guide to Mental Health

The Colors of SM experience is meant to provide healing, self-reflection, and an opportunity to build meaningful relationships no matter what stage of the SM disease process an inspiration may be in. As they share their story, create new meaning, and relive memories that at times may be painful – it is normal to experience a range of emotions that can include negative emotions like sadness, grief, anxiety, or confusion. Like all emotions, it is healthy to acknowledge and process through them and take steps to cope with them. Doing so helps to build resilience. Everyone copes differently: Some people go inward and find that journaling, creating art, taking a quiet walk in nature, listening to music, etc. are helpful. While other people need to reach outside themselves to talk with a friend or family member, engage in a fun new activity, take an exercise class, join a support group (online or in-person), etc. to feel balanced again. 

Please take a moment to review and acknowledge the Colors of SM: Expressions of Life with Systemic Mastocytosis Guide to Mental Health.

How to get started!

  • Email your match to say hello and exchange additional information. Not sure how to get the conversation going?
  • Register for the peer-to-peer group for your role.
  • Set a time to meet your match!
  • Discuss when you will connect again. Aim for at least once every 3-4 weeks.
  • Check in with your mentor if you have questions or issues. Please check in with your mentor after each connection to confirm things are moving forward.
  • Enjoy connecting with your match!

Your Team

Jenna Benn Shersher
Twist Out Cancer Founder and CEO
jenna@twistoutcancer.org
Amelia Hanrahan
Amelia Hanrahan
Twist Out Cancer Chief Operating Officer
amelia@twistoutcancer.org
August Spree
Twist Out Cancer Director of Programs
august@twistoutcancer.org
Ana Gordon
Ana Gordon, LCSW, OCW-C
Twist Out Cancer Clinical Director
ana@twistoutcancer.org
Jenna Koch, LMSW
Twist Out Cancer Program Associate
jennakoch@twistoutcancer.org
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