Effective Date: October 28, 2026

1. Introduction

Twist Out Cancer (“Twist Out Cancer,” “we,” “us,” or “our”) is a 501(c)(3) nonprofit organization dedicated to providing social and emotional support to individuals touched by cancer through creative arts programming.

We believe that sharing our stories creates meaningful connections and opportunities for healing. We are equally committed to respecting the privacy, dignity, and trust of the individuals who participate in our programs, support our mission, and engage with our organization.

This Privacy Policy explains how we collect, use, store, share, and protect personal information through our website, programs, events, communications, and fundraising activities.

By using our website or providing personal information to Twist Out Cancer, you acknowledge the practices described in this policy.

2. Information We Collect

We may collect personal information when you interact with Twist Out Cancer, including when you:

• Visit our website.
• Subscribe to our newsletter.
• Make a donation or become a sponsor.
• Register for an event, workshop, or program.
• Apply to participate in Brushes with Cancer or other programming.
• Volunteer or collaborate with our organization.
• Complete surveys or provide program feedback.
• Contact us through email, online forms, or other communication channels.

Depending on the interaction, information collected may include:

Personal Information

• Name
• Email address
• Mailing address
• Telephone number
• Organization or professional affiliation

Donation and Transaction Information

• Donation amounts and transaction history
• Billing and payment-related information
• Sponsorship commitments
• Event ticket purchases

Program Participation Information

• Program applications and registration details
• Personal experiences and stories voluntarily shared
• Information about an individual’s connection to cancer
• Artwork, photographs, testimonials, and other submitted materials
• Feedback about program experiences

Website Information

We may automatically collect certain technical information, including IP addresses, browser types, device information, pages visited, and website usage patterns.

3. Sensitive Personal and Health-Related Information

Because Twist Out Cancer serves individuals affected by cancer, participants may voluntarily share sensitive information about their health, diagnosis, treatment experiences, caregiving responsibilities, or emotional well-being.

We recognize the deeply personal nature of these experiences and are committed to handling this information with care and respect.

We collect sensitive information when it is relevant to program participation, support services, or other purposes disclosed to participants.

We limit access to sensitive information to authorized individuals who need it to fulfill their responsibilities.

We do not sell personal health-related information.

Twist Out Cancer is not necessarily a covered entity under the Health Insurance Portability and Accountability Act (HIPAA). However, we recognize the importance of confidentiality and strive to follow appropriate privacy and data protection practices.

Participation in our programs does not automatically constitute permission to publicly disclose an individual’s health information or personal story.

4. How We Use Your Information

We may use personal information to:

• Deliver and improve our creative arts programming.
• Process donations and provide acknowledgments.
• Manage event registrations and participation.
• Communicate information about programs, events, and opportunities.
• Send newsletters, fundraising appeals, and organizational updates.
• Respond to inquiries and requests.
• Evaluate program effectiveness and organizational impact.
• Maintain records necessary for nonprofit administration.
• Comply with applicable legal and regulatory obligations.
• Protect the security and integrity of our organization and website.

We seek to collect and use information only for legitimate organizational purposes consistent with our mission.

5. Donations and Payment Processing

When you make a donation or purchase an event ticket, payment information may be collected and processed through secure third-party payment platforms.

These providers maintain their own privacy and security practices.

Twist Out Cancer does not intentionally store complete credit card information on its website servers.

Donation records may be retained for financial reporting, donor acknowledgment, legal compliance, and nonprofit administration.

We do not sell donor information.

We may contact donors about the impact of their generosity, upcoming opportunities, and future fundraising initiatives. Donors may request changes to their communication preferences at any time.

6. Email Communications and Newsletters

Individuals who subscribe to our mailing lists or otherwise agree to receive communications may receive:

• Organizational newsletters
• Program announcements
• Event invitations
• Fundraising campaigns
• Volunteer opportunities
• Stories highlighting our community and impact

You may unsubscribe from marketing and fundraising emails at any time by selecting the unsubscribe link included in those communications or contacting us directly.

We may continue to send necessary transactional or administrative communications related to donations, registrations, or program participation.

7. Participant Stories, Artwork, Photography, and Media

Storytelling is central to Twist Out Cancer’s mission.

Through programs such as Brushes with Cancer, Twistshops, and other creative arts initiatives, individuals may choose to share personal experiences through artwork, written reflections, interviews, photography, or video.

We recognize that these stories may contain deeply personal information.

When appropriate, we obtain permission through participation agreements, media releases, or other authorization processes before publicly sharing identifiable participant stories, images, or creative work.

Approved materials may appear in:

• Our website and social media channels
• Newsletters and fundraising campaigns
• Art exhibitions and events
• Educational and promotional materials
• Media coverage and organizational publications

Participants who have concerns about the use of their personal stories or images may contact Twist Out Cancer to discuss their preferences.

Requests to remove previously published materials will be reviewed, although removal from third-party publications or previously distributed materials may not always be possible.

8. Sharing Information With Third Parties

We may share personal information with trusted third-party service providers when necessary to operate our organization.

These may include providers supporting:

• Donation and payment processing
• Email communications
• Event registration and ticketing
• Website hosting and maintenance
• Program administration
• Data management and reporting
• Organizational operations

We may also share limited information with program partners when reasonably necessary to coordinate services or fulfill disclosed program purposes.

We do not sell personal information to third parties.

We may disclose information when required by law or when reasonably necessary to protect the rights, safety, or security of individuals or the organization.

9. Cookies and Website Analytics

Our website may use cookies and similar technologies to support website functionality, understand visitor engagement, and improve the user experience.

These technologies may collect information about website activity, browser settings, and device characteristics.

Third-party analytics and embedded content providers may also use cookies or similar technologies according to their own privacy policies.

Visitors may manage certain cookie preferences through their browser settings. Disabling cookies may affect some website functionality.

Where required by applicable law, we will provide additional choices regarding nonessential cookies or tracking technologies.

10. Data Security

Twist Out Cancer takes reasonable administrative, technical, and organizational measures to protect personal information against unauthorized access, disclosure, alteration, or destruction.

Access to personal information is limited to those with organizational responsibilities and operational needs.

Although we strive to safeguard information, no electronic transmission or storage system can be guaranteed to be completely secure.

We encourage individuals to avoid submitting unnecessary sensitive information through unsecured communication channels.

11. Data Retention

We retain personal information for as long as reasonably necessary to fulfill the purposes described in this Privacy Policy, meet legal obligations, maintain appropriate organizational records, and support legitimate nonprofit operations.

Retention periods may vary depending on the type of information and the purpose for which it was collected.

When information is no longer needed, we seek to securely delete, anonymize, or otherwise appropriately dispose of it.

12. Children’s Privacy

Twist Out Cancer offers certain programs and creative arts experiences that may involve children and families.

We recognize the importance of protecting children’s personal information.

When collecting personal information from children, we seek to obtain appropriate parental or guardian authorization as required by applicable law.

We do not knowingly collect personal information online from children under 13 without legally required parental consent.

Parents or guardians who have questions about information collected from their children may contact us.

13. Your Privacy Choices and Rights

Depending on your location and applicable law, you may have rights concerning your personal information.

These may include the ability to:

• Request access to personal information we maintain.
• Request corrections to inaccurate information.
• Request deletion of certain personal information.
• Withdraw consent where processing is based on consent.
• Opt out of marketing and fundraising communications.
• Raise concerns about how personal information is handled.

Certain requests may be subject to legal exceptions, recordkeeping requirements, or other applicable limitations.

To submit a privacy-related request, please contact us using the information below.

We may need to verify your identity before fulfilling certain requests.

14. Third-Party Websites and Social Media

Our website and communications may contain links to external websites, social media platforms, donation portals, or partner organizations.

These third parties maintain their own privacy policies and practices.

Twist Out Cancer is not responsible for the privacy practices or content of independently operated third-party websites.

We encourage visitors to review the privacy policies of external services before providing personal information.

15. International Visitors

Twist Out Cancer engages with individuals and communities in multiple geographic locations.

If you access our website or participate in programming from outside the United States, your information may be processed or stored in the United States or other locations where our service providers operate.

Privacy and data protection laws may differ across jurisdictions.

Where applicable, we will seek to comply with relevant legal requirements governing international personal information.

16. Changes to This Privacy Policy

Twist Out Cancer may update this Privacy Policy periodically to reflect changes in our programs, technology, organizational practices, or legal obligations.

We will post updates on our website with a revised effective date.

We encourage visitors to review this policy periodically.

17. Contact Us

If you have questions, concerns, or requests regarding this Privacy Policy or how Twist Out Cancer handles personal information, please contact:

Twist Out Cancer
PO Box 427
Villanova, PA 19085

Email: info@twistoutcancer.org

Website: twistoutcancer.org

We are committed to responding thoughtfully to privacy-related inquiries and maintaining the trust of our community.

Share. Connect. Heal.

At Twist Out Cancer, every story matters. We are committed to honoring the individuals who share their experiences with us and protecting the trust that makes our community possible.